All the R things

And so with my R. Did I remember to contact the DDD coordinator to ask how many weeks the scripts for OT and Speech should be written for by his developmental pediatrician? Did I remember to bring the attention assessment form that his teacher filled out? Did I remember check with the insurance company yet to see how much they will cover for a medicinal genetics test? Well, for this morning, our quarterly appointment, the answer is no to all of the above. It’s the first week of classes. I forgot. I should have remembered. Once my brain reaches a certain capacity, anything left over simply falls off, like an overflowing bathtub. We met with Dr. A. today. She smiled, “He’s come a long way.” It is concrete evidence that we have a solid team in place: there’s Dr. A, the developmental pediatrician; Dr C, our pediatrician; A. the BCBA at school; J the teacher at school; A the speech pathologist at school; B the OT at school; AJ, A, B, J the staff at school (he went to Taco Bell with AJ for his earned outing on Tuesday!); J the adaptive services personnel at after-school camp; M. the BCBA for ABA services; H. the BT for ABA; D. the home speech therapist; N. the home OT therapist; the baseball buddies at Miracle League.; his nana; his poppop; his cousins; his aunt; his friends. Did I list everyone? Did I leave anyone out? I’m sorry if I did. And did I remember to put enough medicine in his bag for school to cover the weeks he’s with his dad? Did I remember to request a refill? If I did, did I remember to pick it up? How’s my pull-up inventory looking? Am I available for Parent Training? Will I be there for the supervisor meeting? How about his IEP? When is a good time? Should I contact our advocate? Did I send in my quarterly report to the ESA? Did he take his med this morning? Did I check off his chore sheet? When will I be able to meet with his DDD coordinator? If I get him dressed in the morning, how much time will I need? While there are gifted certainties, much of my life with R. is full of questions. My brain feels like swiss cheese sometimes. I know I am not alone in this. I have two other children. I know that there are other parents who go through all of these questions and more. To all of you and everyone, I salute you, fist bump you, secret-special-needs-parent-signal you. I see you. I KNOW.

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